Related papers: Co-Designing a wiki-based community knowledge mana…
The debate on data access and privacy is an ongoing one. It is kept alive by the never-ending changes/upgrades in (i) the shape of the data collected (in terms of size, diversity, sensitivity and quality), (ii) the laws governing data…
Personal health libraries (PHLs) provide a single point of secure access to patients digital health data and enable the integration of knowledge stored in their digital health profiles with other sources of global knowledge. PHLs can help…
Human-centered computing research has been increasingly applied to address important challenges in the health domain. Conducting research in cross-disciplinary teams can come with a lot of challenges in integrating knowledge across fields.…
Knowledge graphs that encapsulate personal health information, or personal health knowledge graphs (PHKG), can help enable personalized health care in knowledge-driven systems. In this paper we provide a short survey of existing work…
Despite the growing availability of tools designed to support scholarly knowledge extraction and organization, many researchers still rely on manual methods, sometimes due to unfamiliarity with existing technologies or limited access to…
Personalised medicine strives to identify the right treatment for the right patient at the right time, integrating different types of biological and environmental information. Such information come from a variety of sources: omics data…
Participatory design effectively engages stakeholders in technology development but is often constrained by small, resource-intensive activities. This study explores a scalable complementary method, enabling broad pattern identification in…
Across almost all scientific disciplines, the instruments that record our experimental data and the methods required for storage and data analysis are rapidly increasing in complexity. This gives rise to the need for scientific communities…
Open Science aims to foster openness and collaboration in research, leading to more significant scientific and social impact. However, practicing Open Science comes with several challenges and is currently not properly rewarded. In this…
Scientific workflows are powerful tools for management of scalable experiments, often composed of complex tasks running on distributed resources. Existing cyberinfrastructure provides components that can be utilized within repeatable…
Navigating and visualizing multilayered knowledge graphs remains a challenging, unresolved problem in information systems design. Building on our earlier study, which engaged end users in both the design and population of a domain-specific…
As the amount of scientific data continues to grow at ever faster rates, the research community is increasingly in need of flexible computational infrastructure that can support the entirety of the data science lifecycle, including…
Recommender systems are personalized information access applications; they are ubiquitous in today's online environment, and effective at finding items that meet user needs and tastes. As the reach of recommender systems has extended, it…
The extent to which the benefits of science can be fully realized depends critically upon the quality of the connection between researchers themselves and between researchers and members of the public. We believe that it is now possible to…
Reproducibility should be a cornerstone of scientific research and is a growing concern among the scientific community and the public. Understanding how to design services and tools that support documentation, preservation and sharing is…
In recent years, there has been an increased focus on early detection, prevention, and prediction of diseases. This, together with advances in sensor technology and the Internet of Things, has led to accelerated efforts in the development…
This paper describes the development of and first experiences with 'Design Your Life': a novel method aimed at user-initiated design of technologies supporting young autistic adults in independent living. A conceptual, phenomenological…
One of the fundamental aspects of cognitive architectures is their ability to encode and manipulate knowledge. Without a consistent, well-designed, and scalable knowledge management scheme, an architecture will be unable to move past toy…
Despite the indisputable personal and societal benefits of regular physical activity, a large portion of the population does not follow the recommended guidelines, harming their health and wellness. The World Health Organization has called…
The reproduction and replication of novel results has become a major issue for a number of scientific disciplines. In computer science and related computational disciplines such as systems biology, the issues closely revolve around the…