Related papers: The HEAL Data Platform
Personal Health Records (PHR) emerge as an alternative to integrate patient's health information to give a global view of patients' status. However, integration is not a trivial feature when dealing with a variety electronic health systems…
Publicly available data from open sources (e.g., United States Census Bureau (Census), World Health Organization (WHO), Intergovernmental Panel on Climate Change (IPCC)) are vital resources for policy makers, students and researchers across…
This paper introduces a Blockchain-Integrated Explainable AI Framework (BXHF) for healthcare systems to tackle two essential challenges confronting health information networks: safe data exchange and comprehensible AI-driven clinical…
Today's big data science communities manage their data publication and replication at the application layer. These communities utilize myriad mechanisms to publish, discover, and retrieve datasets - the result is an ecosystem of either…
GitHub is the world's largest platform for collaborative software development, with over 100 million users. GitHub is also used extensively for open data collaboration, hosting more than 800 million open data files, totaling 142 terabytes…
Electronic Health Records (EHRs) store sensitive patient information, necessitating stringent access control and sharing mechanisms to uphold data security and comply with privacy regulations such as the General Data Protection Regulation…
Across many domains, large swaths of digital assets are being stored across distributed data repositories, e.g., the DANDI Archive [8]. The distribution and diversity of these repositories impede researchers from formally defining…
Privacy-preserving data processing refers to the methods and models that allow computing and analyzing sensitive data with a guarantee of confidentiality. As cloud computing and applications that rely on data continue to expand, there is an…
In the evolving landscape of clinical informatics, the integration and utilization of software tools developed through governmental funding represent a pivotal advancement in research and application. However, the dispersion of these tools…
A large number of cloud middleware platforms and tools are deployed to support a variety of Internet of Things (IoT) data analytics tasks. It is a common practice that such cloud platforms are only used by its owners to achieve their…
Managing personal health data is a challenge in today's fragmented and institution-centric healthcare ecosystem. Individuals often lack meaningful control over their medical records, which are scattered across incompatible systems and…
While the biomedical community has published several "open data" sources in the last decade, most researchers still endure severe logistical and technical challenges to discover, query, and integrate heterogeneous data and knowledge from…
Scientific data management is at a critical juncture, driven by exponential data growth, increasing cross-domain dependencies, and a severe reproducibility crisis in modern research. Traditional centralized data management approaches are…
The healthcare industry has witnessed significant transformations in e-health services by using mobile edge computing (MEC) and blockchain to facilitate healthcare operations. Many MEC-blockchain-based schemes have been proposed, but some…
Electronic health records (EHRs) and other real-world clinical data are essential for clinical research, medical artificial intelligence, and life science, but their sharing is severely limited by privacy, governance, and interoperability…
Blockchain technology has rapidly evolved from an enabling technology for cryptocurrencies to a potential solution to a wider range of problems found in data-centric and distributed systems. Interest in this area has encouraged many recent…
Intelligent assistive technologies are increasingly recognized as critical daily-use enablers for people with disabilities and age-related functional decline. Longitudinal studies, curation of quality datasets, live monitoring in activities…
Centralized electronic health record repositories are critical for advancing disease surveillance, public health research, and evidence-based policymaking. However, developing countries face persistent challenges in achieving this due to…
Health management has become a primary problem as new kinds of diseases and complex symptoms are introduced to a rapidly growing modern society. Building a better and smarter healthcare infrastructure is one of the ultimate goals of a smart…
This paper highlights the design philosophy and architecture of the Health Guardian, a platform developed by the IBM Digital Health team to accelerate discoveries of new digital biomarkers and development of digital health technologies. The…