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Related papers: Practices and challenges in clinical data sharing

200 papers

This paper discusses about the challenges, advantages and shortcomings of existing solutions in data security and privacy in public cloud computing. As in cloud computing, oceans of data will be stored. Data stored in public cloud would…

Cryptography and Security · Computer Science 2018-12-17 Yue Shi

Computational social science research, particularly online studies, often involves exposing participants to the adverse phenomenon the researchers aim to study. Examples include presenting conspiracy theories in surveys, exposing systems to…

Computers and Society · Computer Science 2026-03-03 Protiva Sen , Laurent Hébert-Dufresne , Pablo Bose , Juniper Lovato

Information sharing has become a vital part in our day-to-day life due to the pervasiveness of Internet technology. In any given collaboration, information needs to flow from one participant to another. While participants may be interested…

Cryptography and Security · Computer Science 2016-01-11 Nalin Asanka Gamagedara Arachchilage , Andrew Martin

Health data is a sensitive category of personal data. It might result in a high risk to individual and health information handling rights and opportunities unless there is a palatable defense. Reasonable security standards are needed to…

Cryptography and Security · Computer Science 2020-10-21 Ayan Chatterjee , Ali Shahaab , Martin W. Gerdes , Santiago Martinez , Pankaj Khatiwada

Digitized, networked healthcare promises earlier detection, precision therapeutics, and continuous care; yet, it also expands the surface for privacy loss and compliance risk. We argue for a shift from siloed, application-specific…

Cryptography and Security · Computer Science 2026-01-09 M. Amin Rahimian , Benjamin Panny , James Joshi

Data-driven technologies have improved the efficiency, reliability and effectiveness of healthcare services, but come with an increasing demand for data, which is challenging due to privacy-related constraints on sharing data in healthcare…

Protecting personal information privacy has become a controversial issue among online social network providers and users. Most social network providers have developed several techniques to decrease threats and risks to the users privacy.…

Social and Information Networks · Computer Science 2013-05-14 Nahier Aldhafferi , Charles Watson , A. S. M Sajeev

Generating value from data requires the ability to find, access and make sense of datasets. There are many efforts underway to encourage data sharing and reuse, from scientific publishers asking authors to submit data alongside manuscripts…

In today's mobile application marketplace, the ability of consumers to make informed choices regarding their privacy is extremely limited. Consumers largely rely on privacy policies and app permission mechanisms, but these do an inadequate…

Computers and Society · Computer Science 2015-01-05 Steven C. Isley

Big data is a term used for a very large data sets that have many difficulties in storing and processing the data. Analysis this much amount of data will lead to information loss. The main goal of this paper is to share data in a way that…

Cryptography and Security · Computer Science 2018-08-14 Jalpesh Vasa , Panthini Modi

This chapter revises the most important aspects in how computing infrastructures should be configured and intelligently managed to fulfill the most notably security aspects required by Big Data applications. One of them is privacy. It is a…

Cryptography and Security · Computer Science 2016-01-28 Jose Moura , Carlos Serrao

Privacy Security of data in Cloud Storage is one of the main issues. Many Frameworks and Technologies are used to preserve data security in cloud storage. [1] Proposes a framework which includes the design of data organization structure,…

Cryptography and Security · Computer Science 2012-05-15 Rajeev Bedi , Mohit Marwaha , Tajinder Singh , Harwinder Singh , Amritpal Singh

Data sharing is crucial for open science and reproducible research, but the legal sharing of clinical data requires the removal of protected health information from electronic health records. This process, known as de-identification, is…

Machine Learning · Computer Science 2024-01-04 Yuxin Xiao , Shulammite Lim , Tom Joseph Pollard , Marzyeh Ghassemi

Healthcare stands at a critical crossroads. Artificial Intelligence and modern computing are unlocking opportunities, yet their value lies in the data that fuels them. The value of healthcare data is no longer limited to individual…

Computers and Society · Computer Science 2025-11-21 Adam Leon Kesner , Anyi Li , Phillip Koo

The increasing availability of personal data has enabled significant advances in fields such as machine learning, healthcare, and cybersecurity. However, this data abundance also raises serious privacy concerns, especially in light of…

Cryptography and Security · Computer Science 2026-04-24 Napsu Karmitsa , Antti Airola , Tapio Pahikkala , Tinja Pitkämäki

Privacy and data protection have become more and more important in recent years since an increasing number of enterprises and startups are harvesting personal data as a part of their business model. One central requirement of the GDPR is…

Cryptography and Security · Computer Science 2021-10-15 Tamas Bisztray , Nils Gruschka

Recent advances in the area of legal information systems have led to a variety of applications that promise support in processing and accessing legal documents. Unfortunately, these applications have various limitations, e.g., regarding…

Digital Libraries · Computer Science 2020-05-28 Malte Ostendorff , Till Blume , Saskia Ostendorff

Sensitive information is intrinsically tied to interactions in healthcare, and its protection is of paramount importance for achieving high-quality patient outcomes. Research in healthcare privacy and security is predominantly focused on…

Human-Computer Interaction · Computer Science 2023-06-27 Faiza Tazi , Archana Nandakumar , Josiah Dykstra , Prashanth Rajivan , Sanchari Das

Information access research (and development) sometimes makes use of gender, whether to report on the demographics of participants in a user study, as inputs to personalized results or recommendations, or to make systems gender-fair,…

Information Retrieval · Computer Science 2023-01-18 Christine Pinney , Amifa Raj , Alex Hanna , Michael D. Ekstrand