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Related papers: Practices and challenges in clinical data sharing

200 papers

Synthetic health data have the potential to mitigate privacy concerns when sharing data to support biomedical research and the development of innovative healthcare applications. Modern approaches for data generation based on machine…

Machine Learning · Computer Science 2023-01-11 Chao Yan , Yao Yan , Zhiyu Wan , Ziqi Zhang , Larsson Omberg , Justin Guinney , Sean D. Mooney , Bradley A. Malin

Learning on graphs is becoming prevalent in a wide range of applications including social networks, robotics, communication, medicine, etc. These datasets belonging to entities often contain critical private information. The utilization of…

Machine Learning · Computer Science 2023-05-22 Nimesh Agrawal , Nikita Malik , Sandeep Kumar

A data marketplace is an online venue that brings data owners, data brokers, and data consumers together and facilitates commoditisation of data amongst them. Data pricing, as a key function of a data marketplace, demands quantifying the…

Computer Science and Game Theory · Computer Science 2023-03-10 Mengxiao Zhang , Fernando Beltran , Jiamou Liu

Currently, there is no universal method to track who shared what, with whom, when and for what purposes in a verifiable way to create an individual incentive for data owners. A platform that allows data owners to control, delete, and get…

Cryptography and Security · Computer Science 2025-10-29 Ajay Kumar Shrestha , Julita Vassileva

Publicly available data from open sources (e.g., United States Census Bureau (Census), World Health Organization (WHO), Intergovernmental Panel on Climate Change (IPCC)) are vital resources for policy makers, students and researchers across…

Government agencies typically need to take potential risks of disclosure into account whenever they publish statistics based on their data or give external researchers access to collected data. In this context, the promise of formal privacy…

Cryptography and Security · Computer Science 2023-04-04 Joerg Drechsler

The advent of miniature biosensors has generated numerous opportunities for deploying wireless sensor networks in healthcare. However, an important barrier is that acceptance by healthcare stakeholders is influenced by the effectiveness of…

Cryptography and Security · Computer Science 2020-12-25 Yasmine N. M. Saleh , Claude C. Chibelushi , Ayman A. Abdel-Hamid , Abdel-Hamid Soliman

The scientific method presents a key challenge to privacy because it requires many samples to support a claim. When samples are commercially valuable or privacy-sensitive enough, their owners have strong reasons to avoid releasing them for…

Cryptography and Security · Computer Science 2021-10-05 Andrew Trask , Kritika Prakash

Homomorphic encryption, secure multi-party computation, and differential privacy are part of an emerging class of Privacy Enhancing Technologies which share a common promise: to preserve privacy whilst also obtaining the benefits of…

Human-Computer Interaction · Computer Science 2021-01-21 Nitin Agrawal , Reuben Binns , Max Van Kleek , Kim Laine , Nigel Shadbolt

Surgical data science is a scientific discipline with the objective of improving the quality of interventional healthcare and its value through capturing, organization, analysis, and modeling of data. The goal of the 1st workshop on…

Data mining is an increasingly important technology for extracting useful knowledge hidden in large collections of data. There are, however, negative social perceptions about data mining, among which potential privacy violation and…

Databases · Computer Science 2013-07-01 Sara Hajian

A major impediment to research on improving peer review is the unavailability of peer-review data, since any release of such data must grapple with the sensitivity of the peer review data in terms of protecting identities of reviewers from…

Cryptography and Security · Computer Science 2020-07-01 Wenxin Ding , Nihar B. Shah , Weina Wang

As the amount of scientific data continues to grow at ever faster rates, the research community is increasingly in need of flexible computational infrastructure that can support the entirety of the data science lifecycle, including…

Computers and Society · Computer Science 2016-04-12 Robert L. Grossman , Allison Heath , Mark Murphy , Maria Patterson , Walt Wells

Data sharing is the fuel of the galloping artificial intelligence economy, providing diverse datasets for training robust models. Trust between data providers and data consumers is widely considered one of the most important factors for…

Social and Information Networks · Computer Science 2025-08-20 Wenbo Wu , George Konstantinidis

Coordinated collaboration is essential to realize the added value of and infrastructure requirements for global image data sharing in the life sciences. In this White Paper, we take a first step at presenting some of the most common use…

The advancement in the healthcare sector is entering into a new era in the form of Health 4.0. The integration of innovative technologies like Cyber-Physical Systems (CPS), Big Data, Cloud Computing, Machine Learning, and Blockchain with…

Cryptography and Security · Computer Science 2021-03-24 Mayank Pandey , Rachit Agarwal , Sandeep K. Shukla , Nishchal K. Verma

A data commons is a cloud-based data platform with a governance structure that allows a community to manage, analyze and share its data. Data commons provide a research community with the ability to manage and analyze large datasets using…

Distributed, Parallel, and Cluster Computing · Computer Science 2022-07-25 Robert L. Grossman

Our analysis of recent AI4H publications reveals that, despite a trend toward utilizing open datasets and sharing modeling code, 74% of AI4H papers still rely on private datasets or do not share their code. This is especially concerning in…

Computers and Society · Computer Science 2026-03-05 John Wu , Zhenbang Wu , Jimeng Sun

Differential privacy is the gold standard for statistical data release. Used by governments, companies, and academics, its mathematically rigorous guarantees and worst-case assumptions on the strength and knowledge of attackers make it a…

Cryptography and Security · Computer Science 2024-08-15 Kareem Amin , Alex Kulesza , Sergei Vassilvitskii

Background: Access to medical care is strongly dependent on resource allocation, such as the geographical distribution of medical facilities. Nevertheless, this data is usually restricted to country official documentation, not available to…

Artificial Intelligence · Computer Science 2022-09-27 Selene Baez Santamaria , Emmanouil Manousogiannis , Guusje Boomgaard , Linh P. Tran , Zoltan Szlavik , Robert-Jan Sips