STARR (STAnford Research Repository) is a clinical research support ecosystem that supports basic science research, population health research and translational research at Stanford University. STARR consists of raw and analysis ready multi-modal data, and tools for cohort analysis and self service data access. STARR data is accessible on secure shared computing systems for ad hoc analysis. Also present is a suite of services on top of STARR, that allow researchers access to complex purpose built data cuts, common data models and software solutions. This manuscript is a research resource description and describes the evolution of STARR Tools that are used to offer self-service access to detailed clinical data for research purposes to researchers at Stanford Medicine, along with a framework used to ensure that data acquired via the self-service tools is handled in compliance with all applicable regulations and rules.
@article{arxiv.2412.04248,
title = {Compliant Self Service Access to Secondary Use Clinical Data at Stanford Medicine},
author = {SC Weber and J Pallas and G Olson and D Love and S Malunjkar and S Boosi and E Loh and S Datta and TA Ferris},
journal= {arXiv preprint arXiv:2412.04248},
year = {2024}
}