English

Query Based Construction of Chronic Disease Datasets

Databases 2024-10-21 v1

Abstract

The RECONNECT project addresses the fragmentation of Ireland's public healthcare systems, aiming to enhance service planning and delivery for chronic disease management. By integrating complex systems within the Health Service Executive (HSE), it prioritizes data privacy while supporting future digital resource integration. The methodology encompasses structural integration through a Federated Database design to maintain system autonomy and privacy, semantic integration using a Record Linkage module to facilitate integration without individual identifiers, and the adoption of the HL7-FHIR framework for high interoperability with the national electronic health record (EHR) and the Integrated Information Service (IIS). This innovative approach features a unique architecture for loosely coupled systems and a robust privacy layer. A demonstration system has been implemented to utilize synthetic data from the Hospital Inpatient Enquiry (HIPE), Chronic Disease Management (CDM), Primary Care Reimbursement Service (PCRS) and Retina Screen systems for healthcare queries. Overall, RECONNECT aims to provide timely and effective care, enhance clinical decision-making, and empower policymakers with comprehensive population health insights.

Keywords

Cite

@article{arxiv.2410.13880,
  title  = {Query Based Construction of Chronic Disease Datasets},
  author = {Vuong M. Ngo and Geetika Sood and Patricia Kearney and Fionnuala Donohue and Dongyun Nie and Mark Roantree},
  journal= {arXiv preprint arXiv:2410.13880},
  year   = {2024}
}

Comments

White paper for the RECONNECT project, 14 pages, 4 figures and 18 example queries

R2 v1 2026-06-28T19:26:23.289Z