Related papers: The Power of Data Communities
The Medical Information Mart for Intensive Care (MIMIC) datasets have become the Kernel of Digital Health Research by providing freely accessible, deidentified records from tens of thousands of critical care admissions, enabling a broad…
Scientific datasets play a crucial role in contemporary data-driven research, as they allow for the progress of science by facilitating the discovery of new patterns and phenomena. This mounting demand for empirical research raises…
Data makes science possible. Sharing data improves visibility, and makes the research process transparent. This increases trust in the work, and allows for independent reproduction of results. However, a large proportion of data from…
In this paper, we examine how patterns of scientific collaboration contribute to knowledge creation. Recent studies have shown that scientists can benefit from their position within collaborative networks by being able to receive more…
As the amount of scientific data continues to grow at ever faster rates, the research community is increasingly in need of flexible computational infrastructure that can support the entirety of the data science lifecycle, including…
Data Science research is undergoing a revolution fueled by the transformative power of technology, the Internet, and an ever increasing computational capacity. The rate at which sophisticated algorithms can be developed is unprecedented,…
This position statement is a response to the Office of Science and Technology Policy's Request for Information on "Equitable Data Engagement and Accountability." This response considers data equity specifically for people with disabilities.…
Freely and openly shared low-cost electronic applications, known as open electronics, have sparked a new open-source movement, with much un-tapped potential to advance scientific research. Initially designed to appeal to electronic…
Social science research increasingly demands data-driven insights, yet researchers often face barriers such as lack of technical expertise, inconsistent data formats, and limited access to reliable datasets.Social science research…
Datasets sourced from people with disabilities and older adults play an important role in innovation, benchmarking, and mitigating bias for both assistive and inclusive AI-infused applications. However, they are scarce. We conduct a…
Many powerful computing technologies rely on implicit and explicit data contributions from the public. This dependency suggests a potential source of leverage for the public in its relationship with technology companies: by reducing,…
Community effects on the behaviour of individuals, the community itself and other communities can be observed in a wide range of applications. This is true in scientific research, where communities of researchers have increasingly to…
Metadata, often termed "data about data," is crucial for organizing, understanding, and managing vast omics datasets. It aids in efficient data discovery, integration, and interpretation, enabling users to access, comprehend, and utilize…
Data-centric technologies provide exciting opportunities, but recent research has shown how lack of representation in datasets, often as a result of systemic inequities and socioeconomic disparities, can produce inequitable outcomes that…
To ensure that AI-infused systems work for disabled people, we need to bring accessibility datasets sourced from this community in the development lifecycle. However, there are many ethical and privacy concerns limiting greater data…
A data commons is a cloud-based data platform with a governance structure that allows a community to manage, analyze and share its data. Data commons provide a research community with the ability to manage and analyze large datasets using…
Reproducibility and replicability of research findings are central to the scientific integrity of epidemiology. In addition, many research questions require combiningdata from multiple sources to achieve adequate statistical power. However,…
The communities who develop and support open source scientific software packages are crucial to the utility and success of such packages. Moreover, these communities form an important part of the human infrastructure that enables scientific…
Publicly available data from open sources (e.g., United States Census Bureau (Census), World Health Organization (WHO), Intergovernmental Panel on Climate Change (IPCC)) are vital resources for policy makers, students and researchers across…
Having greater access to data leads to many benefits, from advancing science to promoting accountability in government to boosting innovation. However, merely providing data access does not make data easy to use; even when data is openly…