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Social media platforms, particularly Reddit's r/Epilepsy community, offer a unique perspective into the experiences of individuals with epilepsy (PWE) and their caregivers. This study analyzes 57k posts and 533k comments to explore key…
We used a dictionary built from biomedical terminology extracted from various sources such as DrugBank, MedDRA, MedlinePlus, TCMGeneDIT, to tag more than 8 million Instagram posts by users who have mentioned an epilepsy-relevant drug at…
Social networks are vital for information sharing, especially in the health sector for discussing diseases and treatments. These platforms, however, often feature posts as brief texts, posing challenges for Artificial Intelligence (AI) in…
Long COVID represents an unprecedented case of patient-led illness definition, emerging through Twitter in May 2020 when patients began collectively naming, documenting, and legitimizing their condition before medical institutions…
Mining social media messages for health and drug related information has received significant interest in pharmacovigilance research. Social media sites (e.g., Twitter), have been used for monitoring drug abuse, adverse reactions of drug…
Biomedical knowledge graphs (KG) are heterogenous networks consisting of biological entities as nodes and relations between them as edges. These entities and relations are extracted from millions of research papers and unified in a single…
Objective: We report the development of the patient-centered myAURA application and suite of methods designed to aid epilepsy patients, caregivers, and researchers in making decisions about care and self-management. Materials and Methods:…
Widespread use of social media has led to the generation of substantial amounts of information about individuals, including health-related information. Social media provides the opportunity to study health-related information about selected…
Social media is a rich source of real-world data that captures valuable patient experience information for pharmacovigilance. However, mining data from unstructured and noisy social media content remains a challenging task. We present a…
The unprecedented growth of Internet users in recent years has resulted in an abundance of unstructured information in the form of social media text. A large percentage of this population is actively engaged in health social networks to…
Epilepsy is a network disease. The epileptic network usually involves spatially distributed brain regions. In this context, noninvasive M/EEG source connectivity is an emerging technique to identify functional brain networks at cortical…
Epilepsy diagnosis and treatment require evidence-intensive reasoning across heterogeneous clinical knowledge, including biosignal patterns, genetic mechanisms, pharmacogenomics, treatment strategies, and patient outcomes. In this work, we…
Sudden Unexpected Death in Epilepsy (SUDEP) remains a leading cause of death in people with epilepsy. Despite the constant risk for patients and bereavement to family members, to date the physiological mechanisms of SUDEP remain unknown.…
Social media data provides propitious opportunities for public health research. However, studies suggest that disparities may exist in the representation of certain populations (e.g., people of lower socioeconomic status). To quantify and…
Social media data has been increasingly used to study biomedical and health-related phenomena. From cohort level discussions of a condition to planetary level analyses of sentiment, social media has provided scientists with unprecedented…
Goal: Epilepsy remains under-diagnosed in low-income countries due to scarce neurologists and costly diagnostic tools. We propose a graph-based deep learning framework to detect epilepsy from low-cost Electroencephalography (EEG) hardware,…
Public concern detection provides potential guidance to the authorities for crisis management before or during a pandemic outbreak. Detecting people's concerns and attention from online social media platforms has been widely acknowledged as…
Our paper investigates the use of discourse embedding techniques to develop a community recommendation system that focuses on mental health support groups on social media. Social media platforms provide a means for users to anonymously…
Social media platforms provide convenient means for users to participate in multiple online activities on various contents and create fast widespread interactions. However, this rapidly growing access has also increased the diverse…
Social media technologies are increasingly utilized by patients, leading to development of online social groups where patients share experiences and offer support to their peers on these platforms. There is limited research investigating…