Related papers: Advancing a Consent-Forward Paradigm for Digital M…
Advances in emerging technologies have accelerated digital transformation with the pervasive digitalization of the economy and society, driving innovations such as smart cities, industry 4.0 and FinTech. Unlike digitization, digitalization…
People have the ability to make sensible assumptions about other people's emotional states by being sympathetic, and because of our common sense of knowledge and the ability to think visually. Over the years, much research has been done on…
Data harvesting and profiling have become a de facto business model for many businesses in the digital economy. The surveillance of individual persons through their use of private sector platforms has a well-understood effect on personal…
We need to rethink our approach to defend privacy on the internet. Currently, policymakers focus heavily on the idea of informed consent as a means to defend privacy. For instance, in many countries the law requires firms to obtain an…
Individual entities are being connected every day with the advancement of Internet of Things (IoT). IoT contains various application domains and healthcare is one of them indeed. It is receiving a lot of attention recently because of its…
Current research in machine learning and artificial intelligence is largely centered on modeling and performance evaluation, less so on data collection. However, recent research demonstrated that limitations and biases in data may…
In this position paper we describe select aspects of our experience with health-related self-tracking, the data generated, and processes surrounding those. In particular we focus on how bilateral patient-clinician engagement may be fostered…
The Covid-19 pandemic has affected the world at multiple levels. Data sharing was pivotal for advancing research to understand the underlying causes and implement effective containment strategies. In response, many countries have promoted…
Creating supportive technologies for people living with multiple chronic conditions is extremely challenging. These patients are often faced with substantial visible and invisible treatment work as well as their everyday responsibilities,…
Technological progress has led to powerful computers and communication technologies that penetrate nowadays all areas of science, industry and our private lives. As a consequence, all these areas are generating digital traces of data…
Privacy and ethics of citizens are at the core of the concerns raised by our increasingly digital society. Profiling users is standard practice for software applications triggering the need for users, also enforced by laws, to properly…
Digital healthcare systems are very popular lately, as they provide a variety of helpful means to monitor people's health state as well as to protect people against an unexpected health situation. These systems contain a huge amount of…
Blind people are often called to contribute image data to datasets for AI innovation with the hope for future accessibility and inclusion. Yet, the visual inspection of the contributed images is inaccessible. To this day, we lack mechanisms…
Many people engage in digital intimacy: sex workers, their clients, and people who create and share intimate content recreationally. With this intimacy comes significant security and privacy risk, exacerbated by stigma. In this article, we…
In the current paradigm of digital personalized services, the centralized management of personal data raises significant privacy concerns, security vulnerabilities, and diminished individual autonomy over sensitive information. Despite…
Social media technologies are increasingly utilized by patients, leading to development of online social groups where patients share experiences and offer support to their peers on these platforms. There is limited research investigating…
Today, web-based companies use user data to provide and enhance services to users, both individually and collectively. Some also analyze user data for other purposes, for example to select advertisements or price offers for users. Some even…
Personal data are not discrete in socially-networked digital environments. A user who consents to allow access to their profile can expose the personal data of their network connections to non-consented access. Therefore, the traditional…
The integration of cloud computing and Internet of Things (IoT) is quickly becoming the key enabler for the digital transformation of the healthcare industry by offering comprehensive improvements in patient engagements, productivity and…
As the ageing population grows, older adults increasingly rely on wearable devices to monitor chronic conditions. However, conventional health data representations (HDRs) often present accessibility challenges, particularly for critical…