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Objective: This paper gives context on recent literature regarding the development of digital personal health libraries (PHL) and provides insights into the potential application of consumer health informatics in diverse clinical…

In this paper we argue that policies are an increasing concern for organizations that are operating a web site. Examples of policies that are relevant in the domain of the web address issues such as privacy of personal data, accessibility…

In the current technology environment, users are often in a vulnerable position when it comes to protecting their privacy. Previous efforts to promote privacy protection have largely focused on top-down approaches such as regulation and…

In its broadest definition, systems biology is the application of a `systems' way of thinking about and doing cell biology. By implication, this also invites us to consider a systems approach in the context of medicine and the treatment of…

Personal Information Management (PIM) refers to the practice and the study of the activities a person performs in order to acquire or create, store, organize, maintain, retrieve, use, and distribute information in each of its many forms…

The landscape of workflow systems for scientific applications is notoriously convoluted with hundreds of seemingly equivalent workflow systems, many isolated research claims, and a steep learning curve. To address some of these challenges…

Existing patient data analytics platforms fail to incorporate information that has context, is personal, and topical to patients. For a recommendation system to give a suitable response to a query or to derive meaningful insights from…

With the growing use of new technologies, healthcare is nowadays undergoing significant changes. Information-based medicine has to exploit medical decision-support systems and requires the analysis of various, heterogeneous data, such as…

With the push for contact- and proximity-tracing solutions as a means to manage the spread of the pandemic, there is a distrust between the citizens and authorities that are deploying these solutions. The efficacy of the solutions relies on…

Advances in user interfaces, pattern recognition, and ubiquitous computing continue to pave the way for better navigation towards our health goals. Quantitative methods which can guide us towards our personal health goals will help us…

The web does not only enable new forms of science, it also creates new possibilities to study science and new digital scholarship. This paper brings together multiple perspectives: from individual researchers seeking the best options to…

Personal informatics research helps people track personal data for the purposes of self-reflection and gaining self-knowledge. This field, however, has predominantly focused on the data collection and insight-generation elements of…

Scientific workflows have been used almost universally across scientific domains, and have underpinned some of the most significant discoveries of the past several decades. Many of these workflows have high computational, storage, and/or…

Contemporary debates on "open science" mostly focus on the pub- lic accessibility of the products of scientific and academic work. In contrast, this paper presents arguments for "opening" the ongoing work of science. That is, this paper is…

Governments around the world are trying to build large data registries for effective delivery of a variety of public services. However, these efforts are often undermined due to serious concerns over privacy risks associated with collection…

One of the key components of designing usable and useful collaborative information retrieval systems is to understand the needs of the users of these systems. Our research team has been exploring collaborative information behavior in a…

The rise of generative AI presents new opportunities for the understanding and practice of self-care through its capability to generate varied content, including self-care suggestions via text and images, and engage in dialogue with users…

This paper is concerned with tracking and interpreting scholarly documents in distributed research communities. We argue that current approaches to document description, and current technological infrastructures particularly over the World…

Many people learn programming independently from online resources and often report struggles in achieving their personal learning goals. Learners frequently describe their experiences as isolating and frustrating, challenged by abundant…

Developing intelligent systems requires combining results from both industry and academia. In this report you find an overview of relevant research fields and industrially applicable technologies for building very large scale cyber physical…