Related papers: Privacy, Altruism, and Experience: Estimating the …
In the digital health domain, ethical data collection practices are crucial for ensuring the availability of quality datasets that drive medical advancement. Data donation, allowing patients to share their medical data for secondary…
We use representative, incentive-compatible online choice experiments involving 19,923 Facebook, Instagram, LinkedIn, and X users in the US to provide the first large-scale, empirical measurement of local network effects in the digital…
Living in the Post API age, researchers face unprecedented challenges in obtaining social media data, while users are concerned about how big tech companies use their data. Data donation offers a promising alternative, however, its…
Health information technologies are transforming how mental healthcare is paid for through value-based care programs, which tie payment to data quantifying care outcomes. But, it is unclear what outcomes data these technologies should…
Peer support is critical to managing chronic health conditions. Online health communities (OHCs) enable patients and caregivers to connect with similar others, yet their large scale makes it challenging to find the most relevant peers and…
Approximately one-third of adults search the internet for health information before visiting an emergency department (ED), with 75% encountering inaccurate content. This study examines how such searches influence patient care. We conducted…
Privacy is a major good for users of personalized services such as recommender systems. When applied to the field of health informatics, privacy concerns of users may be amplified, but the possible utility of such services is also high.…
In modern dynamic constantly developing society, more and more people suffer from chronic and serious diseases and doctors and patients need special and sophisticated medical and health support. Accordingly, prominent health stakeholders…
Traditionally, machine learning algorithms rely on the assumption that all features of a given dataset are available for free. However, there are many concerns such as monetary data collection costs, patient discomfort in medical…
Routinely collected clinical patient data posits a valuable resource for data-driven medical innovation. Such secondary data use for medical research purposes is dependent on the patient's consent. To gain an understanding of the patients'…
Studies have shown that the traces people leave when browsing the internet may indicate the onset of diseases such as cancer. Here we show that the adaptive engines of advertising systems in conjunction with clinically verified…
We propose to improve medical decision making and reduce global health care costs by employing a free Internet-based medical information system with two main target groups: practicing physicians and medical researchers. After acquiring…
Online data sources offer tremendous promise to demography and other social sciences, but researchers worry that the group of people who are represented in online datasets can be different from the general population. We show that by…
A data marketplace is an online venue that brings data owners, data brokers, and data consumers together and facilitates commoditisation of data amongst them. Data pricing, as a key function of a data marketplace, demands quantifying the…
There is an increased sensitivity by people about how companies collect information about them, and how this information is packaged, used and sold. This perceived lack of control is highlighted by the helplessness of users of various…
Consumers value keeping some information about them private from potential marketers. E-commerce dramatically increases the potential for marketers to accumulate otherwise private information about potential customers. Online marketers…
In this paper, we propose a model that could be used by system developers to measure the privacy risk perceived by users when they disclose data into software systems. We first derive a model to measure the perceived privacy risk based on…
Web 2.0, social media, cloud computing, and IoT easily connect people around the globe, overcoming time and space barriers, and offering manifold benefits. However, the technological advances and increased user participation generate novel…
In human computer interaction (HCI), it is common to evaluate the value of HCI designs, techniques, devices, and systems in terms of their benefit to users. It is less common to discuss the benefit of HCI to computers. Every HCI task allows…
People are concerned about privacy, particularly on the Internet. While many studies have provided evidence of this concern, few have explored the nature of the concern in detail, especially for the online environment. With this study, we…