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The robust development of Electronic Health Records (EHRs) causes a significant growth in sharing EHRs for clinical research. However, such a sharing makes it difficult to protect patient's privacy. A number of automated de-identification…

Cryptography and Security · Computer Science 2012-11-19 Jie Qian , Nafees Qamar

Patient notes contain a wealth of information of potentially great interest to medical investigators. However, to protect patients' privacy, Protected Health Information (PHI) must be removed from the patient notes before they can be…

Computation and Language · Computer Science 2016-11-01 Ji Young Lee , Franck Dernoncourt , Ozlem Uzuner , Peter Szolovits

Objective: Patient notes in electronic health records (EHRs) may contain critical information for medical investigations. However, the vast majority of medical investigators can only access de-identified notes, in order to protect the…

Computation and Language · Computer Science 2016-06-14 Franck Dernoncourt , Ji Young Lee , Ozlem Uzuner , Peter Szolovits

In the era of big data, there is an increasing need for healthcare providers, communities, and researchers to share data and collaborate to improve health outcomes, generate valuable insights, and advance research. The Health Insurance…

Cryptography and Security · Computer Science 2023-05-23 Kai Zhang , Xiaoqian Jiang

De-identification of electronic health records (EHR) is a vital step towards advancing health informatics research and maximising the use of available data. It is a two-step process where step one is the identification of protected health…

Computers and Society · Computer Science 2020-02-18 Vithya Yogarajan , Bernhard Pfahringer , Michael Mayo

Background: Electronic health records (EHRs) are a valuable resource for data-driven medical research. However, the presence of protected health information (PHI) makes EHRs unsuitable to be shared for research purposes. De-identification,…

Computation and Language · Computer Science 2024-04-11 Aleksandar Kovačević , Bojana Bašaragin , Nikola Milošević , Goran Nenadić

De-identification is the task of detecting protected health information (PHI) in medical text. It is a critical step in sanitizing electronic health records (EHRs) to be shared for research. Automatic de-identification classifierscan…

Computation and Language · Computer Science 2019-06-13 Max Friedrich , Arne Köhn , Gregor Wiedemann , Chris Biemann

Use of medical data, also known as electronic health records, in research helps develop and advance medical science. However, protecting patient confidentiality and identity while using medical data for analysis is crucial. Medical data can…

Artificial Intelligence · Computer Science 2018-10-17 Vithya Yogarajan , Michael Mayo , Bernhard Pfahringer

Free-text clinical notes detail all aspects of patient care and have great potential to facilitate quality improvement and assurance initiatives as well as advance clinical research. However, concerns about patient privacy and…

Computation and Language · Computer Science 2021-02-23 Nicholas Dobbins , David Wayne , Kahyun Lee , Özlem Uzuner , Meliha Yetisgen

Patient representation learning refers to learning a dense mathematical representation of a patient that encodes meaningful information from Electronic Health Records (EHRs). This is generally performed using advanced deep learning methods.…

Machine Learning · Computer Science 2021-01-26 Yuqi Si , Jingcheng Du , Zhao Li , Xiaoqian Jiang , Timothy Miller , Fei Wang , W. Jim Zheng , Kirk Roberts

Rheumatoid arthritis (RA) is an autoimmune condition caused when patients' immune system mistakenly targets their own tissue. Machine learning (ML) has the potential to identify patterns in patient electronic health records (EHR) to…

Quantitative Methods · Quantitative Biology 2022-10-25 Shengjia Chen , Nikunj Gupta , Woodward B. Galbraith , Valay Shah , Jacopo Cirrone

Data sharing is crucial for open science and reproducible research, but the legal sharing of clinical data requires the removal of protected health information from electronic health records. This process, known as de-identification, is…

Machine Learning · Computer Science 2024-01-04 Yuxin Xiao , Shulammite Lim , Tom Joseph Pollard , Marzyeh Ghassemi

Medical data employed in research frequently comprises sensitive patient health information (PHI), which is subject to rigorous legal frameworks such as the General Data Protection Regulation (GDPR) or the Health Insurance Portability and…

Image and Video Processing · Electrical Eng. & Systems 2024-10-17 Moritz Rempe , Lukas Heine , Constantin Seibold , Fabian Hörst , Jens Kleesiek

Sharing clinical research data is key for increasing the pace of medical discoveries that improve human health. However, concern about study participants' privacy, confidentiality, and safety is a major factor that deters researchers from…

Sharing protected health information (PHI) is critical for furthering biomedical research. Before data can be distributed, practitioners often perform deidentification to remove any PHI contained in the text. Contemporary deidentification…

Computation and Language · Computer Science 2024-10-23 John X. Morris , Thomas R. Campion , Sri Laasya Nutheti , Yifan Peng , Akhil Raj , Ramin Zabih , Curtis L. Cole

Predictive modeling with electronic health record (EHR) data is anticipated to drive personalized medicine and improve healthcare quality. Constructing predictive statistical models typically requires extraction of curated predictor…

We evaluated whether a glaucoma risk assessment (GRA) model trained on All of Us national data can identify patients at high probability of glaucoma using only systemic electronic health records (EHR) at an independent institution. In this…

Machine Learning · Computer Science 2026-04-24 John Xiang , Rohith Ravindranath , Sophia Y. Wang

This paper takes on the problem of automatically identifying clinically-relevant patterns in medical datasets without compromising patient privacy. To achieve this goal, we treat datasets as a black box for both internal and external users…

Software Engineering · Computer Science 2015-01-26 Nafees Qamar , Yilong Yang , Andras Nadas , Zhiming Liu , Janos Sztipanovits

Clinical notes often describe the most important aspects of a patient's physiology and are therefore critical to medical research. However, these notes are typically inaccessible to researchers without prior removal of sensitive protected…

Computation and Language · Computer Science 2018-03-08 Willie Boag , Tristan Naumann , Peter Szolovits

Privacy is a human right that sustains patient-provider trust. Clinical notes capture a patient's private vulnerability and individuality, which are used for care coordination and research. Under HIPAA Safe Harbor, these notes are…

Computers and Society · Computer Science 2026-02-10 Lavender Y. Jiang , Xujin Chris Liu , Kyunghyun Cho , Eric K. Oermann
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