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Modern tools for biological research, especially microscopy, have rapidly advanced in recent years, which has led to the generation of increasingly large amounts of data on a regular basis. The result is that scientists desperately need…
The sharing and citation of research data is becoming increasingly recognized as an essential building block in scientific research across various fields and disciplines. Sharing research data allows other researchers to reproduce results,…
There is growing interest in the issues of preservation and re-use of the records of science, in the "digital era". The aim of the PARSE.Insight project, partly financed by the European Commission under the Seventh Framework Program, is…
The goal of the paper is to present different approaches to privacy-preserving data sharing and publishing in the context of e-health care systems. In particular, the literature review on technical issues in privacy assurance and current…
To improve the quality and efficiency of research, groups within the scientific community seek to exploit the value of data sharing. Funders, institutions, and specialist organizations are developing and implementing strategies to encourage…
The advent of miniature biosensors has generated numerous opportunities for deploying wireless sensor networks in healthcare. However, an important barrier is that acceptance by healthcare stakeholders is influenced by the effectiveness of…
The debate on data access and privacy is an ongoing one. It is kept alive by the never-ending changes/upgrades in (i) the shape of the data collected (in terms of size, diversity, sensitivity and quality), (ii) the laws governing data…
Datasets sourced from people with disabilities and older adults play an important role in innovation, benchmarking, and mitigating bias for both assistive and inclusive AI-infused applications. However, they are scarce. We conduct a…
Data management, which encompasses activities and strategies related to the storage, organization, and description of data and other research materials, helps ensure the usability of datasets -- both for the original research team and for…
To ensure that AI-infused systems work for disabled people, we need to bring accessibility datasets sourced from this community in the development lifecycle. However, there are many ethical and privacy concerns limiting greater data…
Government agencies collect and manage a wide range of ever-growing datasets. While such data has the potential to support research and evidence-based policy making, there are concerns that the dissemination of such data could infringe upon…
Recent studies reveal widespread concern and increasing lack of understanding about how personal data is collected, shared, and used online without consent. This issue is compounded by limited options available for digital citizens to…
Without sufficient information about research data practices occurring in a particular research organisation, there is a risk of mismatching research data service efforts with the needs of its researchers. This study describes how data…
The increasing adoption of Cloud-based data processing and storage poses a number of privacy issues. Users wish to preserve full control over their sensitive data and cannot accept it to be fully accessible to an external storage provider.…
Data sharing is the fuel of the galloping artificial intelligence economy, providing diverse datasets for training robust models. Trust between data providers and data consumers is widely considered one of the most important factors for…
The increasing adoption of Cloud storage poses a number of privacy issues. Users wish to preserve full control over their sensitive data and cannot accept that it to be accessible by the remote storage provider. Previous research was made…
Data sharing is fundamental to scientific progress, enhancing transparency, reproducibility, and innovation across disciplines. Despite its growing significance, the variability of data-sharing practices across research fields remains…
The Covid-19 pandemic has affected the world at multiple levels. Data sharing was pivotal for advancing research to understand the underlying causes and implement effective containment strategies. In response, many countries have promoted…
The growing expanse of e-commerce and the widespread availability of online databases raise many fears regarding loss of privacy and many statistical challenges. Even with encryption and other nominal forms of protection for individual…
A large amount of data and applications are migrated by researchers, stakeholders, academia, and business organizations to the cloud environment due to its large variety of services, which involve the least maintenance cost, maximum…