Towards a Governance Framework for Brain Data
Neurons and Cognition
2021-09-29 v2 Computers and Society
Abstract
The increasing availability of brain data within and outside the biomedical field, combined with the application of artificial intelligence (AI) to brain data analysis, poses a challenge for ethics and governance. We identify distinctive ethical implications of brain data acquisition and processing, and outline a multi-level governance framework. This framework is aimed at maximizing the benefits of facilitated brain data collection and further processing for science and medicine whilst minimizing risks and preventing harmful use. The framework consists of four primary areas of regulatory intervention: binding regulation, ethics and soft law, responsible innovation, and human rights.
Cite
@article{arxiv.2109.11960,
title = {Towards a Governance Framework for Brain Data},
author = {Marcello Ienca and Joseph J. Fins and Ralf J. Jox and Fabrice Jotterand and Silja Voeneky and Roberto Andorno and Tonio Ball and Claude Castelluccia and Ricardo Chavarriaga and Hervé Chneiweiss and Agata Ferretti and Orsolya Friedrich and Samia Hurst and Grischa Merkel and Fruzsina Molnar-Gabor and Jean-Marc Rickli and James Scheibner and Effy Vayena and Rafael Yuste and Philipp Kellmeyer},
journal= {arXiv preprint arXiv:2109.11960},
year = {2021}
}